30 March 2015

Second assessment

We had his second assessment, and now we have the diagnosis we need so we can try and get him some help. 

To those of you who shared your inspiring stories of how your children were diagnosed on the ASD but grew out of it, thank you for sharing, but that's not our situation.

Update, or at least, a second thought:

I may have sounded a bit harsh above.  For that, I apologize.  I had been holding on to hope that somehow, everything would turn out hunky dory.  But his diagnosis was more severe than we had expected, coupled with the specialist's belief that he also has some cognitive impairment, so I am in the process of letting go of the old hopes.  It is bitter, but at this point I must rid myself of what I want or wanted to be true and embrace what is in fact true,.  Only then will I be able to help my son in the way he needs.  

That is not to say I am in despair.  Giving up some lost hopes is not the same as giving up all hope.

Remember, O most gracious Virgin Mary, that never was it known that anyone who fled to thy protection, implored thy help, or sought thine intercession was left unaided. Inspired by this confidence, I fly unto thee, O Virgin of virgins, my mother; to thee do I come, before thee I stand, sinful and sorrowful. O Mother of the Word Incarnate, despise not my petitions, but in thy mercy hear and answer me. Amen.

My soul is deprived of peace, I have forgotten what happiness is; I tell myself my future is lost, all that I hoped for from the LORD. The thought of my homeless poverty is wormwood and gall; Remembering it over and over leaves my soul downcast within me. But I will call this to mind, as my reason to have hope: The favors of the LORD are not exhausted, his mercies are not spent; They are renewed each morning, so great is his faithfulness. My portion is the LORD, says my soul; therefore will I hope in him. Good is the LORD to one who waits for him, to the soul that seeks him; It is good to hope in silence for the saving help of the LORD.


Patience said...

Gee I hope I wasn't one of those. We spent hours and hours and $$$$ to help our dd. There were things that worked well and some disasters! She still has her struggles but has done really well. I think it's hard to predict how a child will be at age 4 (when she was diagnosed) to age 20. (where she is now) I do hope in your case that whatever they have told you; that you can get the most out of whatever therapies you get and that your ds exceeds expectations. But I do understand that you are having a tough time right now. I will pray for you guys.

Bear said...

You weren't the only one, Patience. Our son is rated as moderate to severe. He scored in the first or second percentile straight down the line. In addition, he displayed signs of cognitive disability. Whether or not this is completely accurate, I cannot say, but that is what is going on the report.

Patience said...

Well I was never talking about miracles. I guess it's just hard to see what the future will bring.
I really liked the book The Child with Special Needs by Stanley Greenspan. (it's not a quick fix/miracle cure book) but more a child development addressing deficiencies book. It's in the library and was helpful at a time when we were offered no therapy (that we could afford) or much of anything. It gives some good ideas for building communication through something called "floortime" (sort of mindful play) It is useful for all children no matter the cognitive level.